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04 NOVEMBER 2019

Hepatorenal Syndrome Conference Hosted by ALF and the National Kidney Foundation

On September 16th, the American Liver Foundation and the National Kidney Foundation hosted an educational conference, “HRS Dialogue,” in Washington, DC. The seminar was designed to create awareness about Hepatorenal Syndrome (HRS), which is often misunderstood. Hepatologists and nephrologists presented, collaborated and shared their experiences, in efforts to highlight best practices of diagnosis and treatment.

I was delighted to deliver opening remarks and expressed great expectations for the meeting.  In addition to clinician education about the pathophysiology and treatment options available for the disease, the day included a forum for voices of the patients to be heard.

Two members of ALF’s National Patient Advisory Committee contributed to attendees’ understanding of patients’ experiences.  Julie Beadle of National Patient Advisory Committee (NPAC’s), HRS cohort, who was unable to attend, submitted her story, which was shared by moderator Timothy R. Franson, MD, Indiana University School of Medicine, on her behalf.  Jay Beyer-Kropuenske, who is a part of multiple ALF NPAC cohorts, also shared his moving patient story.

John M. Vierling, MD, FACP, Baylor College of Medicine, a member of our National Medical Advisory Committee (NMAC), presented on the etiology of the disease.  He said, “It was a great pleasure to participate in this stimulating gathering, designed to provoke brainstorming and advance an ongoing conversation about how to improve policy.” Also, Rohit Satoskar from Georgetown and an ALF NMAC member attended and spoke.

ALF is always delighted to work with other organizations to advance mutual goals to overcome liver and other diseases.

NealonTom Nealon
President & CEO
American Liver Foundation


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