For Patients For Caregivers For Medical Professionals

HELPLINE 1-800-465-4837
Mon-Fri 9am – 5pm EST

Florida State Resource Center

State Resources

Our Mission

ALF promotes education, advocacy, support services and research for the prevention, treatment and cure of liver disease. ALF Southeast provides a wide variety of these services including information and referral, education programs, support groups, exciting fundraising events, and an array of volunteer opportunities.

Kathleen Flynn
National Senior Director, Engagement

For help with issues related to liver disease, please contact our Help Center by using the Live Chat feature at the bottom of your browser window or call us at (800) 465-4837 Monday through Friday 9 am to 5 pm Eastern Time or by email at info@liverfoundation.org.


Mayo Clinic Liver Transplant Program

Mayo Clinic’s liver transplant doctors and surgeons use proven innovations to successfully treat people with liver failure and other complications of liver conditions. Their expertise with living-donor transplant, a fast-track recovery process and multi-organ transplants are part of why people turn to the Mayo Clinic Liver Transplant Program.

Phone: 904-956-3206
Email: transplant-fla@mayo.edu
Websitehttps://www.mayoclinic.org


Tampa

LifeLink Foundation

LifeLink HealthCare Institute
409 Bayshore Boulevard
Tampa, FL 33606

LifeLink Foundation is a non-profit community service organization dedicated to the recovery of an increasing number of high quality organs and tissue for transplantation therapy. The Foundation attempts to work in a sensitive, diligent, and compassionate manner with donor families to facilitate the donation of desperately needed organs and tissues for waiting patients.

Phone: 813-253-2640 (800-262-5775)
Web: www.lifelinkfound.org


Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.

Not all support groups are facilitated by a medical professional. Some support groups are facilitated by 3rd party organizations and individuals in this region.

ALF also has identified virtual online support groups you can take advantage of by visiting this page.


Bradenton

Tampa Bay Hepatitis & Liver Disease Support Group

Manatee Memorial Hospital
220 90th Avenue North East
Bradenton, FL

Meets: First Tuesday of every month from 7-9pm
Phone: 941-776-8135
Email: dvrbarnes@msn.com

Contact Debbie Barnes for more information.


Miami

Solid Organ Transplant Support Group

Miami Transplant Institute
Highland Professional Building
7th Floor Conference Room
1801 NW 9th Avenue
Miami, FL   33136

Meets: April 15th, May 20th and June 17th from 2:00p.m. – 3:00p.m.
Phone: 305-355-5000
Email: molly.bowdon@jhsmiami.org

For more information please call or e-mail Molly Bowdon, MS, RDN


Safety Harbor

Tampa Bay Hepatitis & Liver Disease Support Group

Mease Countryside Hospital
3231 McMullen Booth Road
Meeting Rooms 1,2,&3
Safety Harbor, FL 34695

Meets: 4th Thursday of every month from 7-9pm
Phone: 727-535-1498
Email: runyonc2001@yahoo.com

Contact Cindy Runyon for more information.


St. Petersburg

Tampa Bay Hepatitis & Liver Disease Support Group

Edward White Hospital
Auditorium
2299 9th Avenue North, Suite 1-G
St. Petersburg, FL 33713

Meets: 2nd Tuesday of every month, 7-9pm
Phone: 727-577-0836 (727-393-8039)
Email: leejay.lee@verizon.net

Contact Don Vauiso for more information.


Tallahassee

Hepatitis and Liver Transplant Support Group

TMH Diabetes Clinic
1981 Capital Circle Northeast
Tallahassee, FL

Meets: 7 pm – 9 pm, First Monday of the every month (including holidays)
Phone: 850-443-8029
Web: www.tmh.org/health-wellness/support-groups
Email: figment@netally.com

Contact Pam Langford for more information.


Tampa

Liver Transplant Support Group

Tampa General Medical Group Transplant Specialty Services
409 Bayshore Boulevard
4th Floor
Tampa, FL 33606

This support group meets from 10:00 AM to 11:00 AM on the first Friday of the month and 10:00 AM to 12:00 PM on the 3rd Friday with a guest speaker scheduled from 11:00 AM to 12:00 PM on the 3rd Friday of the month.

Our mission is to provide compassionate emotional support to pre and post liver transplant patients, caregivers, family and loved ones through their journey of liver transplantation. For more information, contact Marsha Levine 813-210-1333 or Evie Agustin Colon Legon* at 813-348-9726. *Se Habla Español.

Meets:1st and 3rd Friday of the month (see below for times and agenda)
Phone:
 813-210-1333 (813-348-9726)
Web: https://www.tgmg.org/specialties-services/liver-2/

Contact Marsha Levine or Evie Agustin Colon Legon (Se Habla Espanol) for more information.

Transplant Caregivers Support Group

Tampa General Hospital
1 Tampa General Circle
B104 in the cafeteria
Tampa, FL 33606

We believe caregivers affected by transplantation should have the opportunity to understand the journey ahead and how to best prepare for the journey. For more information, contact Stanley Genstein 813-260-3723 or Pattie Jones 661-406-3494 or Evie Agustin Colon Legon* 813-348-9726. *Se Habla Español.

Meets:5:30 PM to 7:00 PM on the 2nd Wednesday of every month
Phone:
 813-260-3723 (661-406-3494)
Web: https://www.tgh.org/
Email: sgenstein@tampabay.rr.com

Contact Stanley Genstein, Pattie Jones and Evie Agustin Colon Legon (SE Habla Espanol) for more information.


Weston

Cleveland Clinic Transplant Support Group

Cleveland Clinic
3100 Weston Road
3rd Floor Conference Room
Weston, FL 33331

Upcoming Dates:
September 20th, 1-2:30 PM
October 18th, 1-2:30 PM

Meets: Third Thursday of Every Month – 1-2:30 PM
RSVP By Phone: 954-659-5133


Find a Clinical Trial anywhere…

Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.


Weston

To evaluate the safety and tolerability of GS-4997 in combination with prednisolone versus prednisolone alone in subjects with severe AH

Cleveland Clinic Florida

Clinical diagnosis of severe AH based on all of the following:

Inclusion:

  • History of excessive alcohol consumption during the past 3 months
  • Aspartate aminotransferase (AST) ≥ 50 U/L
  • Onset of jaundice within the past 3 months
  • Maddrey’s DF ≥ 32 <60 at Screening, based on local laboratory results

Exclusion:

  • HIV Ab positive
  • Positive urine screen for amphetamines, cocaine or opiates (ie, heroin, morphine) at
    Screening
  • Cessation of alcohol consumption for more than 2 months.

Phone: 954-659-5133 (954-659-5888)
Web: https://clinicaltrials.gov/ct2/show/study/NCT02854631?term=alcoholic+hepatitis&rank=34&show_locs=Y

Contact Xaralambos Zervos, DO for more information.

Lilian Abbo, MD, FIDSA
Jackson Health Systems

Kawtar Al Khalloufi, MD
Cleveland Clinic Florida

Kaylan Bhamidimarri, MD
University of Miami Health Systems

Renee Bennett, RN
Cleveland Clinic Florida

Marc Carp, MD
Gastro Health

Johany Coucelo, RN
Jackson Health Systems

Edson Franco, MD

Rolando Garcia-Morales
Broward Health Medical Center

Patrick Horne, ARNP
University of Florida Health - Hepatology

Binu John, MD
Miami VA

Nikhil Kapila, MD
Cleveland Clinic Florida

Andrew Keaveny, MD
Mayo Clinic - Jacksonville

Tara Keegan, RN, BSN
Jackson Health Systems

Ayman Koteish, MD
Florida Hospital - Orlando

Brad Lasley, MMS, PA-C
Advent Health

Geri LiBetti
Jackson Health Systems

Audra Lopez, MSN, ARNP, CNS, FNP
Memorial Hospital

Miguel Malespin, MD
Tampa General Medical Group

Cosme Manzarbeitia, MD, FACS

Eric Martin, MD
University of Miami Health Systems/Miami Transplant Institute

Paul Martin, MD
University of Miami Health Systems

Tamir Miloh, MD
Miami Transplant Institute

Karen McAlevey-Nordt, RN, BSN
Cleveland Clinic Florida

Flavia Mendes, MD
Gastro Health

Barry Migicovsky, MD
Gastro Health

Carla Murgas, RN
Cleveland Clinic Florida

Krystel Nava, RN
Cleveland Clinic Florida

Antonio Pinna, MD
Cleveland Clinic Florida

Diego Reino, MD
Cleveland Clinic Florida

Sam Salama, MD, PhD
Life Alliance Organ Recovery Alliance

Tracy Santos, RN
Cleveland Clinic Florida

Elaine Saunders, RN, BSN
Mayo Clinic - Jacksonville

Burçin Taner, MD
Mayo Clinic - Jacksonville

Emmanuel Thomas, MD, PhD
University of Miami Miller School of Medicine

Andreas Tzakis, MD
Cleveland Clinic Florida

Rodrigo Vianna, MD, PhD
UM Health Systems/MTI

Arlene Watson, RN, CCTC
UM Health Systems/MTI

Ali Zarrinpar, MD, PhD
University of Florida Health/Shands Hospital - Gainesville

Bobby Zervos, DO
Cleveland Clinic Florida

In addition to the resources listed above in your state or district, ALF provides these resources that are available no matter where you are. Explore them now…


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