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Donna B.

Primary Biliary Cholangitis

At the age of 35, after frequent lab results and repeated liver biopsies, I was diagnosed with PBC. For the next 10 years I felt fine without any symptoms. Around 1995 extreme fatigue began. I was hardly able to put one foot on front of the other but continued working full time as a RN and raising 2 daughters. Shortly thereafter, the itching became overwhelming. I quickly learned what might help but more importantly what made it worse. In and around 2003 I became jaundiced. I was very sick. The fatigue, itching, and the jaundice.consumed my life. I had a loving and supportive family but often my battle everyday was very private. I was placed on the transplant list in March 2005.

By the grace of God I received the gift of life – a liver transplant on April 13, 2005.

A complete stranger saved my life and to which I am grateful everyday. As a result I felt strongly that perhaps I could provide some support and understanding to others from my PBC journey. In May 2017 I started a closed Facebook group for such a purpose. No one who suffers from PBC should every feel alone.

Donna manages ALF’s PBC Support Group on Facebook. Click here to visit and join the group!

Last Updated on March 26, 2020


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