Breaking Down Barriers: An introduction to a new patient-focused blog for those impacted by the Hepatitis C virus
By Joey Mattingly, PharmD, MBA; Assistant Professor, University of Maryland School of Pharmacy
My name is Joey Mattingly and I am a pharmacist who researches issues related to Hepatitis C virus (HCV). I am excited to collaborate with the American Liver Foundation on this initiative to engage patients all over the United States who are interested in making research more patient-centered. We will use this blog over the next few months to share stories, experiences, and information that may provide benefit for patients, families, caregivers, clinicians, and other researchers interested in improving the lives of those with HCV.
Where This Idea Came From
The idea for this blog came from a recent research advisory board that was funded by the Patient Centered Outcomes Research Institute (PCORI). If you would like to read more about that research project, please check out this link: Engaging an Underserved Patient Community. Our advisory board was made up of patients, infectious disease specialists, primary care physicians, pharmacists, and HCV researchers.
Over the next few months, we are going to post short articles on various topics selected by our advisory board. We will discuss things like the issues that many patients face when deciding whether they are ready for treatment, the added benefits of treatments that don’t require injections, overcoming insurance paperwork, struggling with disease stigma, and how patients can get involved in research to improve the care of the future. If you have ideas for blog article topics, please contact us or leave a comment at the end of this post!
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