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28 FEBRUARY 2019

Rare Disease Focus February 2019

There are several hundred liver diseases known to exist- many of which are considered to be rare. What is considered rare? In Europe, 1 in 2,000 is considered to be rare, and here in the United States, a disease is generally viewed to be rare when it affects less...

27 FEBRUARY 2019

Listening Session with the FDA on Rare Pediatric Diseases

On November 5, 2018, the American Liver Foundation (ALF) participated in a one-hour listening session on rare pediatric liver diseases with representatives from the Food and Drug Administration (FDA). The goal of the listening session was to provide FDA officials from across the Agency - including reviewers of drugs, biologics,...

27 FEBRUARY 2019

Liver Lowdown February/March 2019

2/28 is Rare Disease Day! Rare Disease Day takes place each year on February 28th. This day is meant to raise awareness about rare diseases, including all rare liver diseases, and the impact they have on patient's everyday lives. To learn more about Rare Disease Day and what...


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