For Patients Caregiver Tips and Advice For Medical Professionals

Local Resources


Aurora, Colorado

Rocky Mountain Liver Transplant Support Group

University of Colorado Hospital
1635 Aurora Court First floor, Room 1603
Aurora, CO 80045

Meets: 2nd Monday of each month from 9:30 a.m. to 11:30 a.m.

Who the Group is for:

  • Pre-transplant Patients
  • Post-transplant Patients
  • Family Members
  • Caregivers
  • Donors
  • Healthcare Professionals
  • Everyone who is interested in the Liver Transplant process

What we do

  • We are a patient run transplant support group for all pre and post liver transplants patients and their families. We share, we laugh, we cry, we console, we learn, and support each other.

Contact Dave Legg, Nancy Pierce for more information.

Phone: (303) 766-0566 ((303) 426-4093)
Email: legbedonor@aol.com


Colorado Springs, Colorado

Pikes Peak Alpha Beaters

Contact: Erma Crawford (Support Group Leader) for more information

http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups

Phone: 719-576-1404

Email: eawcfdc@gmail.com


Denver, Colorado

Alpha Beaters Denver Metro

Contact: Barbee Bennington (Support Group Leader) for more information

http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups

Phone: 855-351-6610

Email: bbennington@alpha1.org


Denver, Colorado

Porter Adventist Hospital Transplant Patient Support Group

Porter Adventist Hospital
2525 South Downing Street
Denver, CO 80210

Meets: Held every other month from 5:30 p.m. – 7:00 p.m. in the Cottonwood Springs Conference Room

All pre and post-transplant patients are welcome. This group is for patients and caregivers to receive support, have questions answered and share their transplant experiences. The group’s facilitators are social workers.

Contact Amy Angell, Liz Grandman for more information.

Phone: (303) 765-6956 ((303) 765-6907)
Email: amyangell@centura.org


Casper, Wyoming

Casper Alpha-1 Support Group

Contact: Sue Blevins (Support Group Leader) for more information

http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups

Phone: 307-333-1679

Email: susanloveshercats@gmail.com


Cheyenne, Wyoming

Cheyenne Alpha-1 Support Group

Contact: Nadine Peterson (Support Group Leader) for more information

http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups

Phone: 307-634-3846

Email: njpeterson2@yahoo.com


HBV Adoption

Contact: Bambi Winkler

HBV Adoption is a group that serves as a source of information and support for Parents of children with the hepatitis B virus. For the benefit of our children’s privacy, all members must be approved for membership. To join, go to https://groups.yahoo.com/hbv-adoption and click the “Join Group” button. Let me know why you are interested and you are on your way to support with over 1150 other parents.


HEP C Post Treatment – Survivors Group

https://www.facebook.com/groups/450670855106683/

“Just because you got the monkey off your back, doesn’t mean the circus has left town.”

This group is for anyone who is POST Treatment for Hepatitis C no matter which drug they took.  Some of us have just completed treatment, some are SVR12 (cured), some have relapsed.  We are here to get healthy regardless and hopefully save our livers! In the process we will stay in touch to monitor our health and get through whatever issues we have Post Treatment.  May we all live happy, healthy lives going forward! We will allow links to information and research and ask that you be careful about your research and article shares and that they be from a reliable source, and also pay attention to the date of the research.  IF IT IS PRIOR TO 9/2014, it is possibly out of date information. 


Aurora, Colorado

Children’s Hospital Transplant Center

13123 East 16th Avenue
Aurora, CO 80045

When transplantation is the best option for your child to have as healthy a life as possible, the experts at Children’s Hospital Colorado are here to help. Our transplant program has been changing lives for 25 years. We have the only pediatric transplant program in the region with this magnitude of experience and expertise. Our unique multidisciplinary team approach to care offers patients excellent outcomes and hope for a better, healthier life. The Liver Transplant Program at Children’s Colorado offers a unique and specialized program devoted to the care of children who require liver transplantation. Our team cares for kids and families from the time of diagnosis to transplant and all the way through long-term post-transplant care.

Phone: 720-777-6011

Website: https://www.childrenscolorado.org/doctors-and-departments/departments/transplant/


Aurora, Colorado

UCHealth Transplant Center

Anschutz Outpatient Pavilion
1635 Aurora Court
Aurora, CO 80045

University of Colorado Hospital conducted the world’s first liver transplant in 1963, and in the years since, has helped fine tune the standard of care for patients needing a liver, kidney, pancreas, heart or lung transplant. Each patient receives thorough screenings, education/counseling, outstanding medical and surgical care and individualized follow-up for the rest of his/her life. This comprehensive, integrated approach ensures we provide the highest level of care.

Phone: 720-330-3877 (Hepatology Department: 720-848-2245)

Website: https://www.uchealth.org/locations/uchealth-transplant-services-anschutz/


Denver, Colorado

Presbyterian St. Luke’s Transplant Center

1601 E 19th Avenue
Suite 5050
Denver, Colorado 80218

The Presbyterian/St. Luke’s (P/SL) Transplant Center was established in October 1985 and has performed more than 1,500 transplants to date. Our multi-disciplinary team will be with you every step of the way – guiding, advising, and answering your questions. At P/SL, we complement our medical and surgical expertise with passionate, comprehensive, coordinated and family-centered care that continues from evaluation and surgery to post-transplant care.

Phone: 1-800-758-1005 (720-754-2155)

Website: https://pslmc.com/service/liver-transplant-center


Denver, Colorado

Transplant Center at Porter Adventist Hospital

2525 South Downing Street
Denver, CO 80210

The Transplant Center at Porter Adventist Hospital is among the premier kidney and liver transplant centers in the country, with medical outcomes rivaling all others. Patients see only board-certified physicians, and their entire transplant team is dedicated exclusively to helping patients in every aspect of their treatment from medical care to dietary guidance, from social and psychological support to assistance with financial and insurance matters. The liver transplant program at Porter Adventist Hospital gives patients a second chance at a healthy life through expertise and innovation. Our entire liver transplant team works together for their patients and has the experience and knowledge that will give you the most options and highest level of experience.

Phone: 303-778-5797 (1-888-872-8891)

Website: https://www.centura.org/locations/porter-adventist-hospital/medical-services/transplant-services


Find a Clinical Trial anywhere…

Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.

Cirrhosis Due to Nonalcoholic Steatohepatitis (NASH)

Western States Clinical Research, Inc

Meets: Enrollment: End of 2018

Principal Investigators: John Goff, MD

The primary objective of this study is to evaluate whether the study drug, SEL (selonsertib) can cause fibrosis regression and reduce associated complications in subjects with cirrhosis due to NASH.

Key Eligibility/Criteria:

– Be between the ages of 18-70 years’ old

– Diagnosis of NASH with F4 Fibrosis; as evident by a liver biopsy obtained during study screening or documented within past 12 months, that is consistent with NASH and cirrhosis (F4 fibrosis)

– Not have another cause of liver disease, such as: alcoholic liver disease, hepatitis B, hepatitis C, liver disease caused by an autoimmune disorder, or drug-induced hepatoxicity.

– Not have had a liver transplant

– Not have a history of cancer in the past 5 years (with the exception of adequately treated cervical CIS & select skin cancers)

– Not have an unstable heart condition

ClinicalTrials.gov Identifier: NCT03053063

https://www.clinicaltrials.gov/ct2/show/NCT03053063?recrs=a&cond=NASH+-+Nonalcoholic+Steatohepatitis&cntry1=NA%3AUS&state1=NA%3AUS%3ACO&rank=3

Contact John Goff, MD for more information.

Phone: (303) 463-3900
Email: goff@wscrinc.com

NASH (Nonalcoholic Steatohepatitis) With Fibrosis

Western States Clinical Research, Inc

Meets: June 2018

Principal Investigators: John Goff, MD

The purpose of this study is to evaluate whether the investigational product can cause fibrosis regression. The primary objective is to prevent progression of cirrhosis and associated complications in subjects with NASH (Nonalcoholic Steatohepatitis) and bridging (F3) fibrosis.

Key Eligibility/Criteria:

– Be between the ages of 18-70 years’ old

– Diagnosis of NASH with F3 Fibrosis; as evident by a liver biopsy obtained during study screening or documented within past 6 months of the study screening visit.

– Not have another cause of liver disease, such as: alcoholic liver disease, hepatitis B, hepatitis C, liver disease caused by an autoimmune disorder, or drug-induced hepatoxicity.

– Not have had a liver transplant

– Not have a history of cancer in the past 5 years (with the exception of adequately treated cervical CIS & select skin cancers)

– Not have an unstable heart condition

ClinicalTrials.gov Identifier: NCT02548351

https://www.clinicaltrials.gov/ct2/show/NCT03053063?recrs=a&cond=NASH+-+Nonalcoholic+Steatohepatitis&cntry1=NA%3AUS&state1=NA%3AUS%3ACO&rank=3https://www.clinicaltrials.gov/ct2/show/NCT02548351?recrs=a&cond=NASH+-+Nonalcoholic+Steatohepatitis&cntry1=NA%3AUS&state1=NA%3AUS%3ACO&rank=1

Contact Falon Bird for more information.

Phone: (303) 940-9773


Donor Alliance

720 South Colorado Boulevard
Suite 800-N
Denver, CO 80246
Phone: (303) 329-4747
Fax: (303) 321-0366

Web: http://www.donoralliance.org

Donor Alliance is a non-profit organization dedicated to saving lives through organ and tissue donation and transplantation. As the organ and tissue procurement agency for Colorado and most of Wyoming, Donor Alliance serves more than 5.8 million residents and more than 100 hospitals.

Donor Alliance adheres to the highest medical, regulatory and ethical standards, and meets every performance standard. By respectfully working with the families of organ and tissue donors, maintaining partnerships with hospitals, educating residents on the life-saving benefits of donation and inspiring them to sign up on the state’s donor registry, Donor Alliance is able to save lives through organ and tissue donation and transplantation. Colorado and Wyoming boast some of the highest rates of donor registration in the country, which directly translates to more lives saved and healed through organ and tissue transplantation. Donor Alliance is one of 58 federally designated organizations of its kind in the United States. For more information visit DonorAlliance.org or the Donate Life Colorado or Donate Life Wyoming Facebook pages.


American Transplant Foundation

600 17th Street Suite 2515
South Denver, CO 80202
303-757-0959
support@americantransplantfoundation.org

Web: https://www.americantransplantfoundation.org/

At the American Transplant Foundation, we believe no one should die while waiting for a lifesaving transplant. As a national 501(c)(3) non-profit organization, we strive to eliminate our country’s shortage of human transplant organs. Our supporters help the Foundation to raise awareness about organ donation, collaborate with other organ donation groups, and work toward better public policy. Twenty people will die today waiting for a life saving organ. Over 95% of Americans waiting for a lifesaving organ are in need of a kidney or liver – an organ that can be donated by a living person. To save lives, we strive to create opportunities for people to become living donors. If just 1 out of every 2,000 Americans became living donors, we could eradicate the kidney and liver transplant waiting list. That is why we are here. Our passion for helping patients through their transplant journeys drives our efforts to support living donors as they give the Gift of Life. We do this by eliminating financial concerns, eradicating educational gaps, and providing one-on-one transplant support.

Our mission is to save lives by reducing the growing list of women, men, and children who are waiting for a transplant. We do this by maximizing living organ donation, which is the most effective way to fulfill our mission. We provide a three-tiered approach with educational, emotional, and financial support for living donors, transplant patients, and their families across the country, with a specific focus on Colorado.


Bonfils Blood Center

717 Yosemite Street
Denver, Colorado 80230
Phone: 303-341-4000
Web: http://www.bonfils.org

As Colorado’s community blood center since 1943, Bonfils proudly provides a safe and adequate blood supply for patients statewide and beyond. Offering healthcare partners more than just blood products by providing support and consultation that leads to improved care and outcomes for patients in need.


Colorado Springs, Colorado

Climbing for Carleen

CFC is offering Free Hep C testing at Mission Medical 2125 E La Salle St, Colorado Springs, CO 80909. Thursday Evenings from 5 to 8pm. We also offering testing in Monument by Appt. We offer a free confidential rapid test. With just one drop of blood we can determine, with great accuracy results in 20 minutes.

Also available to screen at events. www.climbingforcarleen.com

(719) 209-1107


Denver, Colorado

Avella Specialty Pharmacy

1245 E Colfax Ave
Suite 102
Denver, CO 80218

Monthly Hepatitis C Testing Day is the 3rd Thursday of each month from 10:00a.m. – 1:00 p.m. Appointments required. Please schedule your appointment by calling (303) 863-7644 or online at HeyDenver.org/resources.


Denver, Colorado

Liver Health Connection

Liver Health Connection

1325 South Colorado Boulevard

Suite B-302

Denver, CO 80222

 

Liver Disease Help Line: (800) 522-4372

www.liverhealthconnection.org

Email: info@liverhealthconnection.org

 

HEPATITIS C ANTIBODY TESTING is offered at the Liver Health Connection office and at various community sites and events during the year.

  • We offer FREE testing in house to anyone that would like a test.
  • It is recommended for individuals born between 1945 and 1965 or to anyone who:
  • Received blood or blood products before 1992
  • Injected drugs and/or snorting equipment– even once, ever!
  • Have or had a sexual partner who is hepatitis C positive
  • Had a tattoo or piercing done in an unprofessional setting (prison, home, etc.)

We also provide referrals to testing sites throughout Colorado.

 

CHAPP (COLORADO HIV/AIDS PREVENTION PROGRAM) IN PUEBLO

The CHAPP contract consists of HIV/HCV education and testing and PrEP Outreach, Education, Marketing, and Navigation in Pueblo CO. We are focused on Crossroads Turning Points, but will also be providing HIV/HCV testing and PrEP Outreach to other community based organizations in the Pueblo area. Provide information, materials, and referrals regarding PrEP

 

PATIENT NAVIGATION SERVICES FOR HCV (ALSO HAS RESOURCES FOR HIV)

  • Provide education, testing and risk reduction counseling to high-risk individuals
  • Assist in applying for Medicaid or other insurance
  • Provide direction in obtaining confirmatory/genotype testing needed for hepatitis C
  • Explain labs results; diagnosis and refer to a specialist/PCP
  • Provide information regarding other liver conditions such as HBV, NASH, Liver Cancer and where you can get help
  • Assist you in scheduling appointments with PCP’s/specialists
  • Provide transportation assistance
  • Share information and other community resources such as financial assistance, patient assistance programs, referrals for substance abuse and/or mental health services

(place them as last listing)


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