For Patients Caregiver Tips and Advice For Medical Professionals

Local Resources

Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.

Not all support groups are facilitated by an American Liver Foundation volunteer. Some support groups are facilitated by 3rd party organizations and individuals in this region. Some support groups may no longer be active and have not informed us; if you are aware of additional support groups in New England or groups which no longer meet, please e-mail us to let us know.


Brockton, Massachussetts

Anonymous Hepatitis C Support Group

COPE CenterDirections
81 Pleasant Street
Brockton, MA

Meets: Last Tuesday of the month, 7:00pm-8:30pm

Phone: (508) 583-3405
Email: cope@bamsi.org


Boston, Massachusetts

C is for Cure: Hepatitis C Support Group

Father Mychal Judge Recovery CenterDirections
St. Anthony Shrine
100 Arch Street
Boston, MA 02110

Meets: Last Wednesday of the Month at 5:30 p.m.

This is an American Liver Foundation sponsored Support Group providing answers to questions about testing, treatment, and where to turn for help.

Contact Anthony for more information.

Phone: 781-526-3679


Burlington, Massachusetts

Hepatitis C & Liver Disease Support Group

Lahey Hospital and Medical CenterDirections
41 Mall Road
4 West Conference Room
Burlington, MA

Meets: 1st Wednesday, 6:00 p.m. – 7:30 p.m

Please note, there is no group held in August.

This group is open to pre and post-transplant patients, family, and caregivers as well.

Contact: Kimberly Ricciardone


Cambridge, Massachusetts

Hepatitis C Support Group-Cambridge

AIDS Action Committee, Cambridge OfficeDirections
359 Green Street
Cambridge, MA 02139

Meets: 1st Wednesday of the month, 1-2:30

Lunch is offered during this support group. Attendees are invited to arrive at 12:30 for lunch. The meeting begins at 1 pm.

Contact Luis (AIDS Action Committee) for more information.

Phone: 617-599-0225
Web: http://www.aac.org/


Gloucester, Massachusetts

Hepatitis C Support Group-North Shore

North Shore Health ProjectDirections
67 Middle Street
Gloucester, MA 02930

Meets: 2nd Saturday of month, 10-11:30am

Contact Jason for more information.

Phone: (978) 283-0101
Web: www.healthproject.org


Support Groups Near You

Visit the American Liver Foundation support group page here to find the closest support group to you.


Online Support Groups

Visit the American Liver Foundation online support group at Inspire…


Find a Clinical Trial anywhere…

Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.


Boston, Massachusetts

A Phase 2, Open-Label, Multicenter, Multi-cohort Study to Investigate the Safety and Efficacy of Sofosbuvir/Velpatasvir in Adolescents and Children

Boston Children’s Hospital

  • All genotypes
  • Expect enrollment to start with 12-17 year olds by late winter/early spring 2017

Contact Courtney Glavin for more information.

Phone: 617-355-8350


Boston, Massachusetts

An Open-Label, Multicenter Study to Evaluate the Pharmacokinetics, Safety, and Efficacy of Glecaprevir/Pibrentasvir in Pediatric Subjects with Genotype

Boston Children’s Hospital

  • All genotypes
  • Expect enrollment with 12/17 year olds by late winter/early spring 2017

Contact Denis Nguyen for more information.

Phone: 617-355-0530


Boston, Massachusetts

An Open-Label, Multicenter, Study to Evaluate the Pharmacokinetics, Safety and Efficacy of OBV, PTV, RTV with or without DSV and with or without RBV i

Boston Children’s Hospital

  • Currently enrolling patients 9-11yo
  • Expect to enroll 8-10yo by spring/summer 2017

Contact Denis Nguyen for more information.

Phone: 617-355-0530


Boston, Massachusetts

Massachusetts General Hospital

MGH has a few in the pipeline that they anticipate to be starting in the next 3-4 months (mainly NASH and HCV). In terms of MGH trials – the LiverResearchGroup@partners.org is a great contact to give out if people are just looking to hear more about what’s available, etc.

* Intercept – drug Obeticholic Acid (ClinicalTrials.gov Identifier: NCT02548351)

Population: NASH + Fibrosis stage 1-3

Study Phase: 3

Treatment period: up to 5 years (interim analysis at 18 months)

Randomization: 1:1:1 (placebo/10mg/25mg)

* Genfit – drug Elafibranor

Population: NASH + Fibrosis (stage 1-4)

Treatment period: 72 weeks with long term treatment rollover (up to 4 additional years)

Study Phase: 3

Randomization: 2:1 (120mcg/placebo)

* Conatus12 – drug Emricasan (ClinicalTrials.gov Identifier: NCT02686762)

Population: NASH + Fibrosis stage 1-3

Treatment period: 72 weeks + 4 weeks follow-up

Study Phase: 2

Randomization: 1:1:1 (placebo/5mg/50mg)

* Novartis – drug LJN452 (ClinicalTrials.gov Identifier: NCT02855164)

Population: NASH + Fibrosis (stage 1-3)

Treatment period: 12 weeks

Study Phase: 2

Randomization: Part A: 1:1:1:1:1 (10mg/30mg/60mg/90mg/placebo)

NASH Cirrhosis

* Conatus14 – Emricasan (ClinicalTrials.gov Identifier: NCT02960204)

Population: NASH + Cirrhosis + Severe Portal Hypertension (HVPG > 12)

Treatment period: 24 weeks

Study Phase: 2

Randomization: 1:1:1:1 (placebo/5mg/25mg/50mg)

HCV

* Gilead – drug Harvoni (ClinicalTrials.gov Identifier: NCT02503735)

Population: Chronic Kidney Disease + HCV

Treatment period: 12 weeks

Study Phase: 4

Randomization: open label (no placebo)

* AbbVie – drug Viekira Pak (ClinicalTrials.gov Identifier: NCT02946034)

Population: Chronic Kidney Disease + HCV

Treatment period: 12 weeks

Study Phase: 4

Randomization: open label (no placebo)

Contact JLGustafson@partners.org (MGH Liver Research Group) for more information.

Phone: 617-724-3836
Email: LiverResearchGroup@partners.org


Worcester, Massachusetts

UMass Memorial Medical Center

University of Massachusetts Medical School
55 Lake Avenue North HA.382
Worcester, MA 01655-0002 USA

Severe Alcoholic Hepatitis

* Gilead Sciences: ASK1 Inhibitor + prednisolone vs prednisolone alone

* NIAAA: Anakinra/Pentoxyfilline/Zinc (has treatment as well as observational arms)

NASH (non-cirrhosis)

* Intercept: obetacholic acid

* Genfit: elafibranor

* 2 additional studies for NASH expected to open within the next few weeks.

HCV

* U of Florida/U of NC Chapel Hill: Longitudinal, observational study with patients being treated for approved HCV

Contact Monique Rinner, RN MBA, Research Nurse Coordinator (Department of Medicine, Division of Gastroenterology) for more information.

Phone: 774 442-1982
Email: monique.rinner@umassmemorial.org


Find a Clinical Trial anywhere…

Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.


Providence, Rhode Island

NASH Studies with or without Cirrhosis

University Gastroenterology, Rhode Island

Open and enrolling (plus four more to begin in the next 90 days)

  • Octeta – Phase II: Insulin modulator for NASH/Non-Cirrhosis
  • Conatus – Phase II: Caspase Inhibitor for NASH/Cirrhosis and Non-Cirrhosis
  • Intercept – Phase III: obetacholic acid/FXR agonist for NASH/antifibrotic
  • Gilead – Phase III: FXR agonist and ASK inhibitor for NASH/Cirrhosis and Non-Cirrhosis
  • Tobira – Phase III: Immunomodulator for NASH/Non-Cirrhosis

ALF Help Line
1-800-465-4837

ALF New England Office
1-800-298-6766

In addition to the resources below, the American Liver Foundation has many support guides that can be viewed and downloaded directly from our website:


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