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Local Resources

Browse the tabs below to find support groups, clinical trials, and other area resources that may help you. A downloadable resource guide is also available.


Life with Primary Biliary Cholangitis

Join the PBC Support Group Facebook page for weekly discussions and presentations on different prominent topics in PBC!

December 1st, 2017 – December 31st, 2017 (9:00 am – 10:00 am) – $free

Contact: Jamie Chitwood (Email)
Phone: 314-356-2300 | More Information

Click here to join the PBC Support Group facebook page to learn about PBC resouces, information, and gain community support!

The live discussions and chat sessions will occur every Wednesday starting 5/3/17 from 9am-10am and 7pm-8pm. The information and discussions will remain posted for those who are unable to attend live!



Kansas City, Kansas

Liver Transplant Support Group

Kansas University Medical Center
Wyandotte Room
Directions
3901 Rainbow Boulevard
Kansas City, KS 66160

Meets: First Wednesday of each month, 7 PM

Not an ALF-affiliated support group

Contact Greg for more information.

Phone: (816) 455-2940


Wichita, Kansas

Hepatitis C Support Group

Immanuel Baptist Church – Directions
Room 252
1415 S. Topeka
Wichita, KS

Meets: 3rd Thursday of Every Month from 6-8 PM

Contact Carol Harms for more information.

Phone: 1.316.269.2495
Email: carolharms87@yahoo.com


St. Louis, Missouri

Pre & Post Liver Transplant Support Group

Barnes-Jewish Hospital
Center for Advanced Medicine Building
Directions
4921 Parkview Place
3rd Floor, Farrell Conference Room #2
St. Louis, MO 63110

Meets: Third Wednesday of each month, 6:30 – 8 PM

Not an ALF-affiliated support group

Contact Ada Sengchannavong, LMSW for more information.

Phone: (314) 362-0319


Find a Clinical Trial anywhere…

Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.


University of Missouri Healthcare

Randomized, Open-Label, Multicenter, Controlled, Pivotal Study to Assess Safety and Efficacy of ELAD in Subjects w/ AILD

The primary objective of the study is to evaluate safety and efficacy of ELAD with respect to overall survival of subjects with a clinical diagnosis of alcohol-induced liver decompensation (AILD) through at least Study Day 91.

Contact Susan Pew, RN Study Coordinator for more information.

Phone: 573-882-4758
Email: pews@health.missouri.edu

Wellness Know Your Liver Lifestyle &
Chronic Disease
Mindfulness Utilizing Mindfulness on Your Journey to Wellness Improving Liver Health through Mindfulness Using Mindfulness to Overcome Chronic Disease
Fitness & Exercise Fitness & Exercise: The Key to Wellness Managing Liver Health with Fitness & Exercise Finding Time and Energy for Fitness & Exercise with Chronic Disease
Nutrition Eating to Your Health Nutrition & Liver Health Practical Healthy Eating for Chronic Disease Patients
Financial Literacy Reducing Stress through Financial Management Financial Literacy and Liver Disease Accessing Disability Benefits
Mental Health Maintaining Positive Mental Health Poor Mental Health Can Damage Your Liver Supporting Your Mental Health While Living with a Chronic Disease
Prevention
Engaging Your Primary Care Physician In Your Wellness Journey Super Foods for Your Liver Stay Focused on Your General Health While Combating a Chronic Disease
Disease Management Preventing Chronic Disease through Lifestyle Choices Managing Your Medications with Liver Disease Living Your Life to the Fullest with a  Chronic Disease: Beauty & Brains
Vaccinations Vaccinations Are an Integral Part of Wellness Preventing Viral Hepatitis Vaccinations to Manage Chronic Disease
Obesity Awareness Prevent Obesity and Its Challenges Fatty Liver: Know the Risk Factors Balance Disease Management and Weight Management
Know Your Liver Love Your Liver: Why You Should Care Understanding Your Liver Function Test Results Preventing Liver Damage While Living with Chronic Disease
Alcohol/Smoking Wellness May Still Include Responsible Drinking Alcoholic Hepatitis: Prevention & Treatment Being Responsible With a Chronic Disease
Understanding Insurance Understanding the Basics of Health Insurance Getting Hepatitis C Treatment through Insurance Health Insurance and Chronic Disease: What You Need to Know

Turkey Burger

In the Doctor's Kitchen Eating a healthy diet and exercising regularly helps the liver to work well. If you’re living with liver disease, your diet is often adjusted to meet your individual needs. You should always talk to your doctor about what’s best for you, but here are some general ...

Hummus Dip

In the Doctor's Kitchen Eating a healthy diet and exercising regularly helps the liver to work well. If you’re living with liver disease, your diet is often adjusted to meet your individual needs. You should always talk to your doctor about what’s best for you, but here are some general ...

Liver Loving Quinoa

In the Doctor's Kitchen Eating a healthy diet and exercising regularly helps the liver to work well. If you’re living with liver disease, your diet is often adjusted to meet your individual needs. You should always talk to your doctor about what’s best for you, but here are some general ...

The PBC Breakfast Sandwich

In the Doctor's Kitchen Eating a healthy diet and exercising regularly helps the liver to work well. If you’re living with liver disease, your diet is often adjusted to meet your individual needs. You should always talk to your doctor about what’s best for you, but here are some general ...

The Missouri Health Department has created an online tool for adding/updating information to the Missouri Viral Hepatitis Resource Directory. The goal is for the directory to provide a comprehensive list of all entities providing hepatitis related services.

To access the directory, click here.


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