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Local Resources


Manhattan


Alpha-1 Foundation Support Group – New York / New Jersey

New York, New York

Alpha-1 Foundation has over 80 Support Groups Nationwide for Liver and Lung affected Alphas. Please call for more information, including dates and times for support groups or please check www.alpha1.org

Contact Lori Tartell and Joe Reidy for more information.

Phone: 212-523-5471 (201-444-7839)
Web: http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups
Email: ltartell@chpnet.org

 


Manhattan HCV Support Group

Lower East Side Harm Reduction Center
25 Allen Street
New York, NY 10002

Meets: Thursdays from 1:00 – 2:00 pm

Contact Perla Romero for more information.

Phone: 212-226-6333 ext 114

 


Manhattan Hepatitis C Support Group

Mount Sinai Medical Center
Guggenheim Pavillion – Directions
1425 Madison Ave (98th St)
Room 1184
New York, NY

Meets: Third Wednesday of each month; 6- 7:30 p.m.

Open to all

Contact Viktoriya Khaitova for more information.

Phone: 212-659-8928

 


Manhattan HVC Support Group

Positive Health Project
301 West 37th Street
New York, NY 10018

Meets: Every Thursday; 11:00am-12:00pm

Contact Yvette Gonzalez for more information.

Phone: 212-465-8304

 

 


Post Transplant Support Group

New York Presbyterian Hospital
Milstein Hospital Building – Directions
177 Fort Washington Avenue
7 Hudson South – Reemtsma Conference Room 213
New York, NY

Meets: First and Third Thursday of every month; 10:00-11:30AM

The Post-Transplant Support Group meets twice a month to share experiences, ideas and mutual support for recipients and their families.

Contact Aimee Muth for more information.

Phone: 212-305-1884

 


Pre-Post Transplant Educational Workshop

New York Presbyterian Hospital/Columbian University Medical Center – Directions
Hammer Health Sciences Building
701 W 168th St @ Fort Washington Lower Level LL-204
New York, NY 10032

Meets: Thursdays from 4:00-5:20pm

For Pre-Post Transplant Patients and their caregivers. Please contact Aimee Muth to confirm your attendance.

Contact Aimee Muth for more information.

Phone: 212-305-1884

 


Transplant Support Group

The Recanati/Miller Transplantation Institute at Mount Sinai HospitalDirections
One Gustave L. Levy Place
New York, NY 10029

Meets: Thursdays 1pm

This support group is open to all patients and patient’s family members who are pre or post liver and/or kidney transplantation. Entrance on 1468 Madison Ave.; (100th St. and Madison Ave.); Guggenheim Pavillion; Floor: 9 Center, Patient Lounge

Phone: (212) 241-7944

 


New York Primary Biliary Cirrhosis Support Group

Mt. Sinai – East Building – Directions
1425 Madison Ave
Madison Ave. and corner of 98th St. 11th Floor, Room 1184
New York, NY

Meets: Thursday, October 17th, 2019 6:30-7:20 speaker Q & A, 7:30 8:30 pm *Support group

“The New Frontier of Liver Disease Treatments” With speaker Dr. Scott Friedman, Chief of the Division of Liver Diseases, Mt. Sinai School of Medicine Sandwiches and beverages will be available. Intercept Pharmaceuticals, Inc. helped fund this meeting. *The support group portion of the meeting is restricted to those with PBC and their invited family/friends.

Contact Norma Goetz for more information.

Email: normagoetz1@gmail.com

 


Brooklyn


Hepatitis C Support Group

New York Methodist Hospital – Directions
Carrington Pavilion entrance
506 Sixth Street (between 7th and 8th Avenues)
Brooklyn, NY

Meets: 3rd Wednesday of each Month 6:00-7:30 PM

Getting There: Executive Dining Room (next to Hospital Cafeteria) Carrington Pavilion entrance 506 Sixth Street between 7th and 8th Avenues Park Slope, Brooklyn; Public Transportation: F Train to Seventh Avenue. B67 (Seventh Ave.), B63 (Fifth Ave.), B75 (Smith St.), and B69 (Vanderbilt Ave.)

Refreshments will be served.

Contact Calvin Lee for more information.

Phone: 718-780-3125

 


Brooklyn VA Hospital Hepatitis B and C Support Group

VA New York Harbor HCS Brooklyn CampusDirections
800 Poly Place
Room POD D
Brooklyn, NY 11209

Open to VA patients, after liver team evaluation.

Contact Dr. Shalini Sehgal for more information.

Email: aytaman@va.gov

 


Voices of Community Advocates and Leaders (VOCAL) Hepatitis C Group

80 A Fourth Ave
Brooklyn, NY 11225
Directions

Meets: Thursdays from 2:00 – 3:00PM

Open to drug users and those that identify with drug use.

Contact Carmen Davilla, carmen@nycahn.org or Louie Jones, louie.vocal@gmail.com for more information.

Contact Carmen Davilla or Louie Jones for more information.

 


The Bronx


Manhattan (Hep C Treatment Group)

CitiWide Harm Reduction HCV GroupsDirections
226 East 144th Street
Bronx, NY 10451

Meets: Every Friday: 10am- 11am

Contact George Santana for more information.

Phone: (718) 292-7718


Alpha-1 Foundation Support Group – Pine City Alphas

Pine City, NY

Alpha-1 Foundation has over 80 Support Groups Nationwide for Liver and Lung affected Alphas. Please call for more information, including dates and times for support groups or please check www.alpha1.org

Contact Carol Hosley for more information.

Phone: 607-734-1148
Web: http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups
Email: pinecitycarol@yahoo.com

 


Western NY PBCers Support Group

113 Creston Court
Rochester, NY 14612
Directions

Meets: meets formally twice yearly – Spring & Fall

A support group for people diagnosed with Primary Biliary Cirrhosis (PBC). Although we only meet as a group twice a year we do meet with new members at anytime needed and always take phone calls and questions.

Contact Carol Roberts (PBCers Organization) for more information.

Phone: 585-225-7845
Web: www.pbcers.org
Email: wnypbcsupport@rochester.rr.com

 


Hepatitis C Support Group

Erie Community College, North Campus
School Of Dental Hygiene – Community Room – Directions
Main and Youngs Rd
Williamsville, NY

Meets: 2nd Tuesday Of The Month 6:30 – 8:00 Pm

Please contact Karen for more information.

Contact Karen Mackert for more information.

Phone: (716) 631-2517 x1463
Email: kmackert@buffalomedicalgroup.com


Hepatitis C Support Group

Albany Gastroenterology Consultants, PcDirections
1375 Washington Ave
Suite 101
Albany, NY 12206

Meets: Meets Once Per Month. Check Website For Date/Time & Any Changes.

There will be no support group meetings during the summer months of July and August. We will begin the meetings again in September.

Contact Yvonne Fuller for more information.

Phone: 518-438-4483 (Ext-2246)
Web: http://www.albanygi.com

 


Dragon Slayers Support Group – Hepatitis C

277 Main Street
Johnson City, NY 13790
Directions

Meets: First Saturday of each month

For individuals who are Hep C positive.

*** Space is currently being renovated and meetings should begin by the first Saturday in August 2014.***

Contact Elisa Harris for more information.

Phone: 607-798-1706
Email: eharris@stapinc.org

 


Hepatitis C & Hepatitis B Support Group (Including Family, Friends, Medical)

O’Conner Hospital Conference RoomDirections
Rt 28
Delhi, NY

Meets: 2nd Thursday Of Every Month 6:00-7:00pm (Longer If Needed)

Meetings open to all living with HCV and/or HBV, their families, friends and support including medical personnel. These meetings respect confidentiality and ask participants to do the same. As weather does not always permit, please call ahead to make sure meetings are taking place. Refreshments provided by O’Connor Hospital.

Contact Lillian de Mauro for more information.

Phone: 607-746-7199
Email: lilliandem@gmail.com


Buddies of New Jersey

149 Hudson Street
Hackensack, NJ 07601
Directions

Meets: Thurday

Call after 5pm for more information.

Phone: (201) 489-2900

 


Hepatitis C Support Group

Saint Michael’s Medical CenterDirections
111 Central Ave
Newark, NJ 7102

Meets: Last Wednesday Of The Month At 12 Noon

There will be no support group meeting in the summer, but meetings will resume in September. If you are interested in participating please call Nancy Scangarello ahead of time to confirm the fall dates.

Contact Nancy Scangarello for more information.

Phone: 973-877-5645

 


Hepatitis C Support Group

195 Columbia Tpk
Suite 110
Florham Park, NJ 07932
Directions

Meets: Second Wednesday each month, 6:30pm

Contact Christine for more information.

Phone: (973)731-4600 x-1218

 


Saint Michael’s Educational Lectures

Liver CenterDirections
111 Central Ave
Newark, NJ 07102

Meets: Every other Wednesday (except July and August) from 12-2pm

Topics change every month.

Lunch will be provided

Contact Liver Center for more information.

Phone: 973-877-5056 (973-877-5105)

 


Caregiver Support Group

Christian Health Care Adult Day ServicesDirections
2000 Siena Village
(Off Valley Road, Wayne)
Wayne, NJ 07470

Meets: First Wednesday of the month, 1:00pm

Note: This group is specifically for caregivers of individuals with dementia

Phone: (973) 305-9155

 


Caregiver Support Groups

Christian Health Care CenterDirections
301 Sicomac Ave
Wyckoff, NJ 07481

Meets: Three support groups listed below.

Second Tuesdays of every month, 12pm Christian Health Care Center, Building 1 Conference Room, 301 Sicomac Ave., Wyckoff, Contact: Kerri Sherer, (201) 848-5830. Registration required.

Second Fridays of every month, 10am Christian Health Care Center, Commons Conference Room, 301 Sicomac Ave., Wyckoff, (201) 848-5867. Registration required.

Third Wednesdays of every month, 5:30pm Christian Health Care Center, Commons Conference Room, 301 Sicomac Ave., Wyckoff, (201) 848-5867. Registration required.


Transplant Support Organization Serving the NY of Westchester, Bronx, Putnam and Dutchess

Greenburgh Town HallDirections
177 Hillside Avenue
(Just north of I-287 at exit 5, Hillside Avenue)
Greenburgh, NY 10603

Meets: Third Wednesday of the Month at 7:00pm

Visit www.transplantsupport.org for more information.

There is ample free parking at the Town Hall and it is accessible via public transportation.

Phone: 914-941-2616
Web: www.transplantsupport.org
Email: email4tso@gmail.com

 


Westchester County (Hepatitis C)

Westchester Medical Center

Meets: every other Wednesday; 6-8pm

Contact Mimi Greenman for more information.

Phone: 914-493-7641


Online Support Group – AcariaHealth Hepatitis C

Meets: Various Times Online (Listed below)

Be a part of these one of a kind group discussions regarding
Hepatitis C therapies!

Upcoming Sessions:
First Timers (for treatment naïve patients)
First Thursday of each month at 9pm EST

Give it Another Go (for treatment experienced patients)
Second Thursday of each month at 12pm EST

One Day at a Time (for patients on active treatment)
Third Thursday of each month at 12pm EST

What Can I Do About…? (for patients seeking help with side
effect management)
Fourth Thursday* of each month at 9pm EST
*Nov. and Dec. sessions will be held on the third Thursday due to the Holidays

Contact Barbara Morgan, RN for more information.

Phone: (800) 511-5144 Ext. 1033
Email: barbara.morgan@acariahealth.com


Bereavement Support Groups

New York City, Long Island, Connecticut and New Jersey

CancerCare is seeking people who have lost a loved one to cancer to participate in its face to face and online bereavement support groups.

For information about the groups currently available please visit:

Web: www.cancercare.org/support_groups


Find a Clinical Trial anywhere…

Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.



New York, New York

PFIC 1/2 Clinical Trial

Mount Sinai Hospital, New York, NY

Progressive Familial Intrahepatic Cholestasis (PFIC)

PFIC is a pediatric liver disease characterized by intense itching. Treatments to combat the itching are very limited and often ineffective.

  • Mount Sinai is currently enrolling patients with PFIC 1/2 in a clinical drug treatment trial for itching (clinicaltrials.gov).

Contact Dr. Jaime Chu for more information.

Phone:  212-659-8060 to obtain more information.


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